PCRCD results.

Yes, that's right, we FINALLY got the results of Brynn's visit to the PCRCD in New Jersey!  I open the email from Dr J and see a chart with a whole bunch of words that I have never heard of and numbers that I have no clue what they mean. (SIGH).  At the bottom of the chart, this is what Dr J reports:

Relatively low production of counter-regulatory cytokines (sTNFRII and IL-10), but she is starting to produce TGF-b.


High IFN-g production with soy protein.


Th cell cytokine expression-relatively skewed to Th1 (IFN-g) in response to polyclonal T cell stimulant (SEB).


Responses to TLR agonists are within normal limits.

HUH???

So, I fwd the email to a good friend, a fellow FPIES mom, who has done a ton of research on
FPIES and ask her if she will de-code this for me.  I also emailed Dr J back and asked her a few
questions to help me understand what these results mean.  After reading their responses, as well
as staring at B's chart and googling TNF-a, IL-6, IL-1b, IL-10, IL-12p40, sTNFRII, TGF-b (the only
one I already knew, lol), CCL2, IGN-g.....Ok you get my drift.  I had to good pretty much everything.
 I then had to look at Brynn's specific corresponding number and figure out what the heck that meant.
 At the end of a few LONG days of emails and decoding, the results are as follows: 

We need to stay away from dairy, soy and wheat...the 3 things Dr J tested.  Soy being the most
 important one for her to stay away from.  Dr J said what isn't something we should trial anytime
 soon, but that somewhere down the road, she may be able to tolerate it. She is building TGF-b
 (counter-regulatory mechanisms)- just not quite enough for these foods, but shows that her body
is getting there (it does know what to do- it just needs more practice and time).