One FPIES Day: Leavin' on a jet plane

Tuesday, March 1, 2011

Leavin' on a jet plane

Well, the time has come. We leave tomorrow for our visit to the PCRCD to hopefully get additional pieces to Brynn's FPIES puzzle. I'm not quite sure how I'm feeling about it. I'm excited to learn more. I'm nervous that we won't get the answers we are hoping for and I'm nervous that the results of the tests will not be in our favor. I'm anxious, I'm happy, I'm scared...but most of all, I'm determined. I'm determined to help Brynn.

1 comment:

Feeding JakeMarch 1, 2011 at 8:32 AM
Good Luck today! We'll be thinking of you guys. I hope you get the help you are looking for. Heather
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What is FPIES?

FPIES is a severe delayed food allergy of the gut, it is understood to be a T-cell mediated response in which food is considered a foreign invader and the body “fights” it until it can violently expel it; although the exact mechanisms are still not well understood.
Symptoms include: profound vomiting (often to bile), diarrhea and/or constipation. These can lead to: lethargy, low body temp or fever, hypotension, and in severe cases, sepsis and shock. And still yet, many children also experience many discomforting symptoms while the body "fights" this reaction and these can include: extreme stomach pains, gas, runny stools with or without mucous or blood, persistant hiccups, acid reflux, rashes, sleep disturbance, and agitation.
FPIES is a clinical diagnosis (based on symptoms), there is currently no test for it