So much to process....

Again, it's been a LONG time since I have updated.  The week after Thanksgiving, Brynn had an upper endoscopy and a flex sigmoidoscopy done.  She had to be put under for this and she did a really good job.  Children's is wonderful...they were blowing bubbles for her and put a flavored chapstick on the mask so it smelled yummy while she drifted off.  In true Brynn fashion, she tore the IV right out of her foot the second she woke up.  She is such a feisty little girl!  The doctor said everything looked ok to the naked eye, except her stomach was really red.  He also said, even though it LOOKED good, we better wait for all the biopsy results before we get too excited.  A few days later, the doctor called with the results.  Not good.  Not good at all.  She has now been diagnosed with eosinophilic colitis (EC) and eosinophilic gastritis (EG), along with her FPIES...all very rare.  Here is a link for more info on eosinophilic diseases, as well as a link to a touching video: 

http://www.apfed.org/drupal/drupal/what_are_egids  

http://apfed.org/video1/video1.htm  << video of kids with eosinophilic disease

The scope also showed signs of celiac disease, however, our GI doctor is stumped, considering she has never really had gluten before.  She also has low lactase (lactose intolerant).  Ugh. 

Last week, we saw her allergist.  He really wasn't very helpful.  EC, EG and FPIES are all so rare, many doctors don't really even know what to do to help us.  I won't go into much more details about that visit.  =) 

Today, we spent 3 hours (?!?!?!) at an appointment with a new doctor, an immunologist.  Overall, it was GREAT.  Aside from the part where they took 8 tubes of blood from my little girl, and had a hard time keeping the needle in one arm, so needed to poke the other arm too.  The nurses said they have never seen such a strong-willed 1.5 year old!  Oh yeah, and aside from the part where she spiked a fever while we were there, needed a chest xray, and now has pneumonia too. Whew. 

Despite all of that, we now have a PLAN in place.  We are holding off on all food trials for at least a month or so to give her gut some time to heal.  Before moving on, we also need to hear back from the doctor on the bloodwork to see if there is anything else we need to be concerned about. Pray for good results!!!!  Thanks for the continued thoughts and prayers! B is a such a tough peanut!!